Corbyn's Surgery Game Plan

We had our appt with Dr C our hematologist today and we will be rescheduling the needed surgery once again. Not only am I perfectly fine with this, but we also game up with a game plan that will best fit Corbyn's needs.

Once again the needed specialty teams have not been communicating as they have needed to ensure everything is done making sure his safety and health needs come first. Because Corbyn is more complex than the average child more doctors need to be involved. Unfortunately, some of these doctors have not seen the importance of their involvement and collaboration prior to surgery.

Since we have been having a difficult time getting all the needed doctors to communicate, Dr. C has recommended that I call our peds Dr first thing in the morning, make an appt with him to be seen as a "follow-up from his hospitalization" and have Dr. M make sure everyone is communicating. He is an amazing Dr and Dr C said he knows that Dr M will do this for us.

However, Dr C will not allow Corbyn to have the ENT surgery with DR S until neurology (Dr's G and F) have a better understanding why he is having dizzy spells and passing out episodes and has been cleared as safe for surgery. He also has to be cleared by Dr M, anesthesia, then Dr C will allow for the IVIg infusion scheduling. All this has to done with at least one month notice to allow for the infusion scheduling.

Once we schedule the infusions, the infusions will be done 5 days prior to surgery. 24-48 hours later Corbyn will have to return to Johns Hopkins, have his blood drawn again, and if his platelet count is not between 150,000-200,000 he will have to have another infusion.

By this point we will not know until we are already there for his surgery if we are cleared or not because on surgery day we will have to start with another blood draw. Once again if his platelets are below 150,000 then Corbyn will not be able to have the scheduled surgery.