Saturday, November 17, 2012

Young Friends Arguments and using “I Feel” Statements when Talking

Tonight while the kids had friends over our youngest started to have arguments with one of her best friends. Well the first time I spoke with her friend and let her know what was going on. The second time I spoke with Ellie. We talked about words and how words make each of us feel including her friends. The third time her friend came complaining, this time I had both girls come in.

Reflecting back to a poster that was in the elementary school room for one of the teachers in CO I spoke with both girls about how their words may mean one thing to them and something else to another person.  The next thing we did was to use “I Feel” sentences with both kids.

First off, I had Ellie use her friends name and tell her how she felt when the two girls were acting like they were. Next, her friend used Ellie’s name first and let her know that she felt upset by Ellie using her name over and over. The argument was over Ellie trying to get her attention for something and her friend telling her sister something.

After both girls told each other what they disliked about what happened, I next had them both tell each other why liked being friends with each other. Within seconds instead of arguing they suddenly ran off giggling in search of whatever toy was so important to play with outside. After having both girls talk to each other using the “I Feel” statements they continued to play for another hour and a half without any further issues.

So why do these statements work so well to stop and prevent further arguments especially in children? Both children have the opportunity to discuss how they feel about what has happened. They talk about what and why they do not like the action. Using “I Feel” statements helps the children to focus on what happened not what their friend or sibling did or did not do. These work because each child involved takes turns talking and listening to each other. Because those involved are actively talking and listening the conflict is more likely to be resolved in a calm and peaceful manner.

Other communication skills that children can practice learning involve the difference between using a soft voice and style, loud voice and style, or thinking and sharing.

For example if children are arguing over crayons or markers while making and coloring pictures, the soft mannered child would not say a word. He or she would either get up and walk away leaving the project alone. The loud mannered child may throw a fit about the arguing and fighting, grab all the project supplies and either shove them aside or put everything away finished or not. The thinking and sharing child would try talking to the other kids or get an adult for help so they can finish the project.

While none of these basic conflict resolution styles is wrong or correct, each approach will produce different results and possibly different consequences. As children are learning they can be asked with different attempts to fix and resolve problems, they can be asked question to help them reflect and share.

What happened?
Do you know what style you used? Soft, Loud, or Thinking and Sharing
After you tried the ___style, what happened?
Were you able to fix or help fix the problem?

As these styles are practiced, children will better recognize what style they are using, and what style will be best in different situations. In addition, they may soon see that one style is not always the right choice to fix every conflict they will encounter.

In the situation of the girls, the soft style of simply walking away was not enough. The loud style was escalating the arguments, and the girls needed help to think and share using “I Feel” statements. One they thought, shared, listened, and found out what was really going on the “conflict” they felt was getting so bad, suddenly was defused and they were once again best friends and laughing, giggling, sharing, and playing.

Wednesday, November 14, 2012

Things we say that would leave others stumped…

This is in response to another feeding tube blog I follow and the their post about comments that we as feeding tube parents say that we either hope others do not hear, or know if they are heard wonder what they are thinking. On the Feeding Raya blog (http://agirlandhertube.blogspot.com )  she lists some of these comments. Her list made me giggle. Ok well some of the comments I laughed more than just giggled over because yes we have been there too.

Some of our comments are:
“Chantelle why are you unplugged again?”
“Chantelle, get over here NOW so we can get your pump running!”
“Mom, just dump it in my bag, that milk is icky!”
“Oh yay!! Now I am so full, stuffed like a turkey” (she says as her feeding pump bag is full and the pump is running again)

Big sister: “Ellie, turn off the alarm on your pump!”
Ellie: “No! it says I am hungry and need milk”
Big sister: “Well, just turn it off until you get milk in there please’
Ellie: “I can’t my hands are busy and my j-tube is screaming for more milk’
Big sister: “UGH, just make it shut up already”
Ellie: “Then give me more milk, I am drawing.”
(A recent argument between Ellie and her big sister as I was in the kitchen making milk trying not to laugh at them)

“Mom! Ellie is leaking again”
“Ellie’s tubes are puking all over again!”
“Mom she’s puking in her bag again”
“Mom! She exploded again!”

“Ellie do you have your IV pole tied to you again?” (She does this she can walk around without pulling it)
 “Ellie that is an IV pole NOT a skateboard”
“hey mom look my IV pole scooter is making me oh so faster than my brothers now!”

“Ellie’s Mom, her pump threw up all over the bus again and got me so gross” (her best friend said when her extension port popped open  on the bus ride home)

“Just breath and blow on my face so we can push this button into your tummy. 1-2-3, blow, all done!! Yay!! Awesome job you did it!

“oh please do not puke!”
“Will one of you bigger kids vent her tummy now so she does not puke again?”

Monday, November 12, 2012

Food Challenges...

For an interesting thought process and how our children with severe food allergies respond to "passing" or "failing" the food challenges please read this post http://theallergistmom.com/2012/09/25/the-food-challenge-challenge/ and how this mother and her child have experienced going through food challenges.

Food challenges for a child truly are not pass or fail, but whether or not child's body can handle the foods yet or not. This mind set makes a huge difference in the kids attitudes

Ellie had a weight check yesterday and she is now up to 45lbs. This is the MOST weight gain she has had in a LONG time (longer than I can remember) in a short period of time and not induced by being on prednisone.

We are very thankful not only for this but also for her increasing energy levels. On Saturday she had 2 hours of dance, came home got a birthday present ready for a friend, attended the Scout Spaghetti Dinner activity, then right after that we went to a birthday party at Chuck E Cheese for one her friends here.

Granted she was EXHAUSTED! We did not even make it out of the parking lot to the light before she was out. She was so soundly asleep that when she was taken out of the truck, put in bed and gotten ready for bed she did not wake up at all.

Sunday morning she woke up long enough for her meds, grab some breakfast, and let us know that she was not feeling well at all. (We expected this) then went back to sleep. She did not wake up until nearly 1pm.

Today she had enough energy and was so excited to go school. This is not only a new thing for her but exciting to see her be able to do. We will see how tired she is when she gets home from school tonight.

Wednesday, November 7, 2012

What has your day been like?


Today has been a crazy, exhausting, long, yet very productive day.

My day started at 5:45 when my day started. Unfortunately I was unable to get Celidah to seminary in time. However, I was able to make sure everyone else was awake, showered, fed and off to school in time.

Once the older kids were off to school I loaded the younger 3 into the truck, took them to school. Showed the school nurse how to work with the MacGyver'ed feeding tube set up for Ellie (until we have the extensions we need).

With the school nurse as comfortable as she was going to get with the setup, shown how to flush the the j-tube, give meds in the g-tube, arrange the time to drop off the forgotten meds, I headed out. I was then off to Pennsylvania to get the needed money order to finish the application process Mini Buddy needs for our Nonprofit status. After getting lost, finding a gas station, putting the address in again I was getting ready to get back on my way.

Well as I was about to get back on my way our insurance case manager called to let me know the status with our DME and helping us find a new one. (She found a new one YAY!!!)

***We have to switch DME companies because the one the insurance "approved" is actually out of network, and if they realize this we may be responsible for out of pocket expenses, copays, back copays, and other back expenses.*** Yeah... So we are switching before our insurance company realizes this...

So with a new DME found she was letting me know about that. Well at the same time I was letting her know about the frustration we were having with getting the correct extensions for the new G-J et button that Ellie has and how 3 (or 4) times now we have given the item part numbers and 3 times now we have been delivered the WRONG extensions!!!! Not to mention the fact that we still did not have what she needed. Part of the issue is the warehouse is located in New Jersey and they are backed up with orders and deliveries due to the hurricane. But still getting the wrong items several times in a row is frustrating.

Finally, I got the money order, talked to our case manager 3 more times while traveling back home. Got home with enough time to finish some needed paperwork for the bank and email it in. Gather the needed meds for the school nurse. (Find my training doll the kids put in a bag in my office *yet had NO idea where it was (sigh)**). With this gathered I got what I needed for the PTA meeting today, and headed back to the school to give the meds to the school nurse and get the PTA meeting.

On my out the door I discovered we had a delivery at the door, grabbed that and placed it in the truck. Then while heading to the school I called our cookie dough fundraising person to get some questions answered. Then as I was arriving to the PTA meeting I peeked in the box to discover I had NO idea what the extension in the box were for... the J-tube or the G-tube??? So I called and left a message for our insurance case manager and asked for help.

Well during the PTA meeting I spoke with our case manager two more times (sigh), got the number for AMT, our local rep (He is amazing) and the 1-800 number. I was given the home health nurses number to get help with the extension issue and we were given authorization for more visits to make sure we get the right supplies. (I felt bad taking up part of the PTA meeting dealing with this issue but it needing clearing up).

Left the meeting (a lot was accomplished there too), we have an AWESOME PTA board! Once I got home I started dinner, called AMT found out what extensions I got (yes something was actually right!!!), found out what else I needed. Called Pharmaquip to get the rest of what I needed. )

Talked to our new DME, (they called while I was on the phone with the other DME,  found out we needed to let Pharmaquip let the new company know they can talk to each other (sigh)...hung up with them) Talked to Pharmaquip again... Told Pharmaquip why we "have" to change... h and our case manager called again...

By the time I finally got this posted and dinner done I had spent over an hour trying to post about my crazy day. As soon as the kids are done eating we are off to the church for scouts and church activities....

So what has your day been like?

Sunday, November 4, 2012

We made it through Hurricane Sandy (the Frankenstorm) without any issues. The only thing we dealt with was a short time without power (while we all slept). We made sure to have Ellie's feeding pumps all fully charged, even her backup Joey pump before heading to bed. Then once they were charged she was not allowed to have them unplugged at all until the next morning.

So far with her GJ feeding tube, things are going great. She has already gained a full pound. This is the most weight gain she has had in over a year without prednisone. The home health nurse is coming again tomorrow to help make sure everything is still working as it is supposed to be. Last week when they came (one was being trained) they were able to help get the second pump set to the correct settings.

As far as school for the kids they missed almost a full week due to the hurricane, returned for Thursday, then they were all out on Friday and will be out Monday and Tuesday.  Ellie missed school on Thursday due to not having the needed paperwork from the doctors to allow the school nurse to do anything with her new feeding tube.

This new feeding tube has both a  j-tube or jejunal feeding tube and a g-tube or gastrostomy tube. The j-tube skips her stomach and enters that jejunum or the middle section of her small intestine between the duodenum and the ileum. This portion of the intestine is responsible for digesting nutrition. Normally the stomach begins the process of digestion, then moves the food to the intestines for complete the process and allow the nutrients to progress through the intestines into the bloodstream.

However, with Ellie, something is not happening normally. For her little body, the stomach digestion process has to be bypassed and started in the jejunum instead. this new j-tube is 45cm long and is placed into her intestines via endoscopic placement while the individual is sedated and is placed by a interventional radiologist. Another wards this is considered a surgical placement in an IR/OR (procedure room). Depending on the patient the J-tube placement times varies based on the intestinal placement.

With her J-tube she has her elemental formula (Neocate Jr) running into her body. She is now slowly gaining more energy. She also has her g-tube where we have been giving her medications and running Pedialyte when she has not been drinking as much.

She still amazes us with everything she has been through and the fact that she is always so happy and cheerful regardless. The other children too have been amazing. Not only with their sisters and brothers but everything we have been through as a family.

Monday, October 29, 2012

Home and Prepped for the Hurricane


Well we are home now. We had a short time frame this morning to get all the needed paperwork done, scripts, DME orders, and everything done so we could be discharged and head home. The hospital social worker made sure we had access to medical transport in case it is needed. They made sure we are on the shelter list in case we lose power.

With everything lined up (DME delivery lined up for Thursday if ALL goes well) we were discharged and daddy came to take us home. We loaded everything up, loaded the car up and came home. On the trip home we passed by a huge convoy of trucks and vans with FEMA, Homeland Security, Search and Rescue, and Red Cross. No clue how many were in the group but there were a LOT and they all had their emergency lights flashing.

As soon as we got home, quickly and carefully Ellie was scooped up from the truck and carried in the house as the winds are so string already. (We are having gusts just over 30mph) We also emptied everything we could from the truck and got in out of the wind and rain.

The first thing Ellie did when getting home of course was to run and hug each of her brothers and sisters, tell them about some of her "adventures" then start carving pumpkins with everyone.