Yay We have kinda normal lungs!!!

We just got back from our pulmonary post-op follow up with Ellie and well for the first time in her life her lungs are finally looking great!! Not only did the bronchs come back great but her lungs at this point are looking and sounding great as well.

We are for the 1st time in her life looking at a chance of cutting back on some of the pulmonary meds in 4 months if we are able to keep her off steroids and antibiotics for lung related illnesses for the next 4 months.

The doctor is sure her weight issues we are dealing with at this point are not lung related. He is sure her lungs are as close to "normal" as they will ever be for her. For us this is the best news we could have heard.

When she left the NICU at 6 weeks of age she left with about 25% overall lung function and we were told somewhere around the age of 6 we would know if her lungs would grow healthier or not. By 8 weeks of age she was fully dependent on oxygen and she would not get back off again until she was 4. She has been on oxygen  many times again due to illness or procedures in the hospital but she was blessed to not have to come home again with oxygen.

Now our big challenge is to get her GI issues solved and find out why she is not gaining weight again...