Well today has been a long and interesting day to say the least. This morning started off with a trip to the peds office for the ordered blood work for Corbyn and Jairon. Ellie tagged along with us in her favorite footed pj's and winter boots. Once the boys were done, we dropped Zach off at school for his monthly book club.

He has LOVED reading and listening to the audio book of the Grave Robber's Apprentice. With Zach dropped off I made sure that Corbyn and Jairon took their note with them as they entered the middle school. As we were almost home Ellie let me know that Zach had left his note in the car. Not wanting to go through the gate on base, return to the elementary school, then go through the busy gate again, we decided to just go home.

Ellie had her down day as this has been her clean out day (GI families know all about this...) so she had lots of movies and extra computer play time. (Thank goodness things are starting to move through...finally, after 2 days)

Lunch was over and I needed to pick Zach up from the school as kids were arriving and high schoolers too. Well I dropped Frank off at work and got a call from the school that the elementary kids had been released nearly an hour ago??? Well for over a year now my calendar has had the wrong release time (sigh). Good thing I was already on my way to grab him.

During the drive over I got a call from the peds clinic letting me know that Corbyn's platelets have dropped again. He had been maintaining around 30K-35K. Yes that is 30,000 to 35,000 for his count. For him that had been a great count. Normal counts are anything over 250,000, but preferably closer to 400,000. Today his counts are now down to 18k. While that is not much of a drop, it has been enough for him to have more than normal bleeding in his ears and along his gums. He has also been bruising easier.

We arrived at John Hopkins for Zach's ortho appt, and he does hyper-mobility syndrome. He also has several tendons and ligaments that are tighter than normal. This could be due to his tendons not stretching normally as he has grown, or an indication of something else.

For now he is to start taking motrin three times a day and start physical therapy to see if that will help. On the way home Corbyn's hematologist called to talk with us about his counts and determine if an ER trip is needed. When I arrived home Frank and I got a good look at him and it looks like he may have petechial rashing again. UGH Really? We are now back to weekly blood draws. Thank goodness this child has no fear of blood or needles.

So now, with Ellie we need to get her GI system feeling and working better. With Corbyn, we have to watch for the petechial rash, bleeding, headaches, abnormal sleepiness oh and increases in bruising. Not to mention if he falls and bumps his head at all, we are to get him in to the ER ASAP, and call the on call heme team once we have left to let them know.