Well today I saw the GI for my issues and the dr had several concerns. The biggest ones are the continued abdominal pain I am having, the nausea issues even with the 8mgs of Zofran, low food intake tolerance, and the unexplained weight loss. While in some ways I am so glad to be losing weight, this really is not the best way to go about.
The biggest concern though was the severity of the ketosis acidosis and the fact that the cause was never determined. Apparently my ketosis issues were more severe than I was originally led to believe. Yes, I knew when I was placed in the hospital in AZ in Oct it was bad and I was not doing well. However, what I did not know is just how close I really was to complete organ failure. According to the dr today had I not been admitted when I was I would have gone into organ failure for sure…
In order to help figure out what is going on I have an abdominal and pelvic ct-scan on Thursday. Then early in Jan I will be having both the endoscopy and colonoscopy redone. When they were done in AZ there were no biopsies done, just a look. I am also being tested for Celiac disease and other things. I forget the whole list. Once these tests are done if the dr is not liking the results or answers then I will have to have motility testing done. (Oh joy…) She also listed off anther list of tests that can be done to help discover the cause of my issues.
However, ultimately the main thing that may have to be done is I may have to go back on gluten for at least a month to help determine what exactly is going on. This is what I am most dreading at this point as gluten puts me in so much pain. Honestly eating solids period are not something I look forward to.
For now though I am to limit the solid food intake and focus mostly on clear liquids. However due to the ketosis issue I am to keep drinking protein shakes at least once a day, (prefer at least 16 ounces) to make sure my body is getting sufficient protein to try and prevent this from happening again. I am also to stop taking the naproxen for now and limit other pain meds. This is going to be frustrating for me as I take the naproxen to reduce joint inflammation.
Thursday I see the endocrine specialist and hopefully will have a better idea of what blood sugar levels are the “safest” for me. Hopefully this dr too will give me ideas on how to prevent a future ketosis attack. This is essential as due to the severity of my attack in Oct, I have been told the next time will not be a nice short week stay in the hospital, but will come with major complications and consequences.
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