We got a call from Ellie’s pulmonologist today concerning her bronchoscopies. For the first time her cultures all came back negative for bacteria, micro bacteria, fungus, and abnormal bacteria!!! The mucus culture came back positive for mild aspiration despite the no liquids and only purees. This is a HUGE improvement for her especially with her lungs.
The only real changes we are making when she returns to school on Monday is he wants her to have her Albuterol breathing treatments during lunch as she is still NPO until further notice and before she heads out for recess.
Also he wants her to have at least 4 breathing treatments all weekend and make we use her accapella device to help vibrate things out of her lungs. On school days to make sure we do a treatment before school, right after school, and right before bed again making sure to use the accapella device.
Ellie was so excited to hear that she can return to school on Monday. We had been advised to keep her out while we she was on 36ml of prednisone because she already has a lower immune system, and we did not want her system exposed to additional bugs and germs at school with such a high dose of steroids knocking her down lower. (Not to mention that she has been wiped out on such a high dose for her little body.)
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