Just heard back from the GI dr about the biopsy results. The results were "mostly" normal. However there are swollen lymph nodes throughout the colon, the stomach and esophagus show signs of high stomach acid.
The celiac test came back negative, she was negative for EE, however something else in addition to the swollen lymph nodes and the ileus combination is treated the same as EE so we are going on the same EE treatment plan.
She is ordering a bunch of blood work, a urine test to rule out a silent UTI, once all that comes back she will put her on a longer dose of antibiotics to get the bacterial overgrowth in her stomach and colon under better control. Also we may have to do another bronch to clean out her lungs and make sure her fevers are not due the introduction of a viral or bacterial infection that is just lingering due to her lower immune system.
For blood work she is ordering two tests one for inflammation and one for chronic inflammation, immune globulin levels, kidney function, protein levels, and several others. She is trying to find out why she is loosing weight instead of gaining. Also depending on the results of the test results she may bring her in sooner then her scheduled apt.
She apologized for taking so long to get back with us and called us back after hours, after she had a chance to read through her records again.
So here we still remain in the idiopathic realm.. Yet we hope to one day to move from idiopathic to diagnosed. Yes that would be so nice...
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