Corbyn... Next week, Corbyn is getting his adenoids and a T-tube that was placed in her ear when he was a toddler. The other one fell out like it was supposed, but this one has stayed put. The ENT removing the tube in his ear said that T-Tubes are typically placed as long term tubes to help in severe infection cases like Corbyn has as a toddler. However, she has NEVER seen one that has stayed in place for for over 5 years. His has been in there for about 11 years now.
The hassle we went through just to make this surgery possible. Oh my goodness... I knew that kids with blood disorders typically did not have surgery of any kind unless absolutely necessary. The process required to have this surgery approved through his heme has been insane.
Feb 3, blood draw for platelet counts
Feb 5 IVIg infusion (6 hours at Johns Hopkins)
Feb 9, blood draw for platelet count (if to low emergency admit for overnight IVIg)
Feb 10, blood draw, platelet count, if high enough, green light for surgery, if to low, red light, reschedule surgery, go home
Feb 12, after surgery IVIg infusion
Feb 5 IVIg infusion (6 hours at Johns Hopkins)
Feb 9, blood draw for platelet count (if to low emergency admit for overnight IVIg)
Feb 10, blood draw, platelet count, if high enough, green light for surgery, if to low, red light, reschedule surgery, go home
Feb 12, after surgery IVIg infusion
Thank goodness all blood counts can be done locally through labcorp, but everything else we have to drive to Johns Hopkins for.
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