Update on Ellie

We have once again reached a point with Ellie where her cough is just not getting and her poor nose is so goopy that her nose is driving her crazy. The good news is at this point she is not running a fever so she is able to attend school still. However, some of the steps are having to take with her now include wearing her mask outside to try and protect her lungs a bit better from the cold. She is back on all thickened (nectar thick) liquids, and the primary fluid intake is via her feeding pump for now. Ellie is also requiring regular breathing treatments at school so we are looking into whether or not she needs an acapala breathing device for school use as well. Currently she only uses it at home after each xopenex breathing treatment. The question though is whether or not she should also be doing this after her neb treatments at school.

So far academically she doing well in school, however as the winter progresses I am hoping that she does not miss more school. We built into her 504 plan to allow for the additional absences she would require both due to her lungs and for the additional appointments she requires. To help her teachers sends something home for her everyday she misses allowing her to get at least the most important parts of her kindergarten day completed at ho,e to help prevent her from falling behind.