New Doctors for Jade...

Jade had a neurology appointment today for the dizzy and blacking out spells she has been having. The neurologist was very thorough with the questions and examination for her. He discovered her blood pressure and heart rate are different when she sitting, laying, and standing, and again after exercise.

The next step? Well before she returns in 6 weeks he wants her to follow the migraine diet carefully, be seen by one of the Mt Sinai Children's Cardiologist. He also wants her to be seen when possible by the local doctor specializing in hypermobility syndromes and connective tissue disorders.

He was totally amazed to learn that when Jade was 2 she was diagnosed with severe/profound autism and we had been told she would never talk or a number of things that normal children and young adults do. Additionally, when we told him we were told by this point in her life she would have to be confined to a group home, he said he wished doctors would stop giving dire predictions like that. Also he stated in all his years as a neurologist, she is the first child ever he has seen that was once diagnosed with a severe/profound diagnosis, no speech  till nearly 5, then become high functioning.

The most frustrating part about these appointments right now is that we are supposed to be updating our EFMP (exceptional family member program) paperwork for the military. This paperwork is essential for the military because transfers are based off medical needs and the ability to meet the needs. For example with Corbyn and his ITP we have to have access to a hematologist that treats kids with platelet disorders.

Well, this is frustrating right now because the kids see one doctor then have to be checked out by another. With Jade, during her physical, it was discovered that she needed to be seen by an eye specialist and the neurologist. At least the eye specialist will be a simple follow up as needed. However, now cardio and bone/joint specialist as well... (sigh)

(and her dance teacher thought I was over reacting by letting her drop dance last year) After she dropped dance she did 6-8 months of 3xs a week of intense physical therapy...