Well we made it through our first day with new eating habits for Ellie today. During the appointment today I am not sure she really understood what the doctor was saying when she said "primary nutrition via feeding tube, NPO for liquids, all meds via feeding feeding tube, and limited fun foods orally, but 100% tube fed until further notice."
I let her eat her lunch that we took with us as the drink was thickened knowing this would be her last actual meal for some time now. By dinner time she was starting to realize what NPO meant and that meant through her feeding tube. Well her "dinner" was thickened with some baby cereal to help make it more filling. However, one nice thing was that we were able to give meds and do her breathing treatment at the same time as her feeding. Poor girl was so tired though and was falling asleep by the end of the breathing treatment. So I let her go to bed and we finished her nebulizer treatment while she slept.
This new eating style will take some getting used to for her (and us) as we are going to have to make sure she does not sneak especially drinks to try and get her lungs to heal up...
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