Just spoke with the John Hopkins peds GI clinic again today (I think this makes three times today alone) and they have been able to help sort out the supply mess with Apria!!! We finally have supplies AND formula coming for Chantelle. They are supposed to be here tomorrow! For right now she is staying on the Bright Beginnings Formula, however she may get switched back to the Neocate, we will see how this works for her being only on this. I really wish we could do the blendarized formula diet for her, however, right now we do not have a Vitamix, the only blender that will mix the formula in small enough particles that it will be able to go through her feeding tube.
Also we are in the process of switching her button from a mic-key to an AMT to trial her on that brand and see how her body reacts and responds to it. We are hoping for less infections, granulomas, and other issues. This shipment should come with 2 buttons, then each month after that (unless we have to use our spare button) we will get one button.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment