Long and exhausting day... AGAIN

WOW long and exhausting day!

Saw my new dr on base. At first I saw extremely annoyed I was already transfered to another dr on base and had only seen my other dr a few times. Well this dr turned out to be a great dr and seemed to be just the dr I needed. After filling him in on what has been going on, and what not been progressing with getting the needed apointments. At this point the new dr felt it was more important to focus on the inability to eat ANY sort of food and the very limited fluid intake.

With that out of the way he wanted me to explain the ER visit as the notes were seriouly lacking in documnetion and were very difficult to read. They had NOT notated my BS (blood sugar) counts as being down to 49. They  listed two IV bags but did not list the start times only the ending times, and had forgetten to document the glucose push. According to the IV times one bag drained in 7 minutes and the other drained in 1 minute??? Then when I told him 1 bag was a regular IV bag and one bag a glucose bag, he asked what did they mean by regular IV bag? This confused me as I was only told regular IV bag.

His next question was "I sure hope they gave you two IV's?" me "um nope just one IV with a Y port." He really did not like that especially when he found out the glucose push was BEFORE the IV's were running. He looked over the blood work and asked about my weight, temp, pre- blood pressures. Then he was furious that NONE of those were taken upon arrival.

Needless to say he was NOT happy at all with how I was treated in the ER, he was ticked with the lack of care and lack and documentation. Apparently the glucose push and saline push through one IV and a y port was NOT supposed to be done. Nor did they document the Glucose push I got at all. Some of my blood work was way off and the only testing that was done was an abdominal x-ray. Blood work after the glucose IV and iv was NOT done, nor to see if more liquids were needed.

He took my notebook that had the phone numbers of the dr's I have referrals for and called the GI dr, told him I needed to be seen today and admitted for testing (ugh). Within a few minutes he came back telling me I had 45 minutes to get things wrapped up at the clinic, get a copy of the referal, find my way to the clinic as he had arranged an emergency apt with the GI dr. Once I got the referral copy from Tricare I headed to the house incase I was not given the option to go back home. I paid our rent and let the office staff know that I was working on finding baby sitting and they and the kids would need access to the house, and let them know the dr's were threatning to admit me today.

 Once done with this quick errand and stop by the apt I headed the 3 blocks to the GI. His reaction was the same as the base dr. I answered the same questions. Fought and argued my case why I needed to be home NOT in the hospital NOT in the hospital. Got the same lecture about what to look. More blood work was ordered (Can we say human pin cushion?). Like the base dr, this dr argued with me about being admitted today. However, with how I was treated in the ER, yes I argued with all I had and yes (again) I did fight hard aboutbeing admitted tonight.

 I was given specific information to share with Frank, Celidah, and Jade so they know when and if the ambulance needs to be called. I was told that if I show signs of severe low sugar issues again then this time to be taken in by the ambulance NOT by car. (Yes I know I have said this several times, but how many times it was drilled into me UGH! I think I know the dangers of low blood sugars now --sigh---) This will increase the changes of proper care. While I DO NOT WANT to ever return to this hospital, both of my dr's need me to be admitted here so they can help with my care and make sure the needed care happens. They needed to know that I know what to look for incase my BS (blood sugar) levels drop below 70 again. I had no idea that 49 is very very bad and both dr’s were SHOCKED I was not only walking but semi-responsive, even if very confused. I guess most with a BS level this low are nearing entering a coma, if not already in a coma.

 At this point the 1st things the GI dr is working to rule are Chrones, ovarian abscess, and appendix issues. He feels very confident that I am not having gall bladder issues because my pains are in the wrong areas even for abnormal gall bladder representation. He is not even sure it is my apendex with how long this has been going on yet he has to rule that out. Right now the GI issues are more important to figure out then the cancer possibility and he is confident if cancer is also involved we can wait another month to begin heading down that road as there is NOBODY here in AZ that knows ANYTHING about sweat gland cancers and any of the of the variants. Then adding in that I have the least common and most rare variant possible, makes things more challenging. He said I need to get to John Hopkins Cancer Center for a complete workup for that.

 I go in on Wed for another CT scan with and without contrast, and have been ordered to remain on just liquids (as clear as possible) until further notice. This GI is bound determined to discover the reason even if it requires exploratory surgery to help find the cause of my not being able to eat. He is willing to get as many tests in with the next two weeks as possible as he is really worried about not eating going for over 2 weeks and now for 8 weeks my ability to eat rapidly decreasing to the point of not being to tolerate any food at all. He is also concerned that over the last 2 1/2-3 weeks my fluid intake levels are also drastically decreasing.

 Maybe now we will get closer to a solution. At least we can play a solution is around the corner...